Tuesday, November 12, 2024

 

You know who you are.


You don' eat what I eat.

You don' smell like I smell.

You don' drive what I drive.

You don' listen to what I listen to.

You don' think like I think.

You don' relax like I relax.

You don' dance like I dance.

You don' drink what I drink.

You don' treasure what I treasure.

You don' talk like I talk.

You don' seek what I seek.

You don' smoke what I smoke.

You don' buy what I buy.

You don' live like I live.

You don' ride what I ride.

You don' write like I write.

You don' see like I see.

You don' care about what I care about.

You don' swim like I swim.

You don' walk like I walk.

You don' value what I value.

You don' watch what I watch.

You don' love like I love.

You don' cook like I cook.

You don' mourn like I mourn.

You don' wash like I wash.

You don' go where I go.

You don' read what I read.

You don' shop where I shop.

You don' play like I play.

You don' create like I create.

You don' breathe like I breathe.

You don' fight what I fight.

You don' even know who you are, do you?


Sunday, July 21, 2024

The epitaph of the Black Prince, a military leader in English history who died of dysintery in the Middle Ages. It is not original, and I haven't found the source. I think it may have been updated a bit, linguistically, here. Particularly the phrase "now a poor caitiff am I" resonates with me. Caitiff is an archaic term for "captive", and I think it captures the sense a person has of imprisonment, not by an enemy, but by the disability or death of their "corps".

 

 

Who so thou be that passeth by,
Where these corps entombed lie:
Understand what I shall say
As at this time speak I may.
 
Such as thou art, some time was I,
Such as I am , such shalt thou be.
I little thought on the hour of death
So long as I enjoyed breath.
 
Great riches here I did possess
Whereof I made great nobleness.
I had gold, silver, wardrobes and
Great treasure, horses,houses, land.
 
But now a caitiff poor am I
Deep in the ground, lo here I lie
My beauty great is all quite gone,
My flesh is wasted to the bone.
 
My house is narrow now and throng,
Nothing but Truth comes from my tongue:
And if ye should see me this day
I do not think but ye would say
That I had never been a man;
So much altered now I am
 
For God’s sake pray to the heavenly King
That he my soul to heaven would bring,
All they that pray and make accord
For me until my God and Lord:
God place him in his Paradise,
Wherein no wretched caitiff lies.

Saturday, July 20, 2024

 

Cerini Bess died on June 22nd, 2023 after a years-long struggle with dementia. She was 86. She leaves 2 sons, Tim Bess and Piet Bess and grandchildren Nigel Bess and Delphina Wedell along with nieces Anne Anderson, Catherine Creely-Hodges, Elizabeth Creely, and Emily Creely and nephew James Creely, close to her because of her lifelong relationship with her brother Christopher “Kit” Creely, who died in 2007.

Cerini was born in Los Angeles, a couple days before Christmas on December 20th, 1936. She complained that this meant she only received one gift for both occasions. She grew up in the middle of the Great Depression, the daughter of bookstore owners Bunster Creely and Virginia Wellendorf Creely. They lived in South Pasadena as a young couple. Bunster joined Virginia's family’s business, the Holmes Book Company, and later opened the Abbey Bookstore on Los Angeles' famed Bookstore Row.

 

Cerini and her brother Kit were very close despite their eight-year difference in age. She talked about how her brother cared for her, and how she would constantly tag along after him and his friends. One of her favorite stories was about when he mischievously gave her a chile, then watched in horror as a single tear rolled down her cheek. He carried her around on his shoulders for the rest of that day, as she described it.

In her early childhood, Cerini lived in Pasadena. Her mother sought out a school there that was not almost all white, and she hiked in the nearby hills with her friend Freddie Pigg. 

After moving to Newport Beach in 1946 with her parents, Cerini lived on Balboa Island in one of the area's early beach shacks. Her mother, “Diddie” divided bedrooms from common areas using rattan blinds. Cerini attended Newport Elementary school where she played on the beach, and gained her lifelong love of the ocean. These days, the playground is on the beach. Back then, the beach was the playground. Cerini told of how she did well in all subjects except recess. She propagated her schooldays attitude in raising her sons. “It’s not a prison,” she said, “Leave whenever you want”, and, “Keep on hitting them until they start crying and stop fighting.”

At that time, people lived on Balboa not only because it was pretty, but also to make a living. Cerini had memories of the small fishing community that existed in Newport beach, before the wide-spread urban development of the fifties and sixties. She sometimes borrowed a dory belonging to a local fisherman. The boat was indescribably heavy, but the man would push it with, as she told it, one huge hand down the sand and into the surf. She and a boy she knew would paddle it around in what I understand to be the ocean off Balboa peninsula, rather than the calmer waters of Newport Bay.

As a teenager, when her parents lived inland on Irvine Avenue, she attended Newport Harbor High School. In a photo of the entire class lined up there, she is one of the few girls with raven hair. 


One of her favorite stories in later years is about how an owner of a stable near her home would let Cerini and her friend ride her horses to exercise them. They explored  the extensive lands of the Irvine Ranch, consolidated in the 1860s from 3 Spanish land grants. One favorite destination was Shark Island, which may be the same as Harbor Island near Pacific Coast Highway. Cerini and her friends would swim the horses out to the sandbar. Now it is connected to the mainland and covered side to side in houses with their own boat docks.

Cerini also spent some time living with her maternal grandmother Mabel nee Holmes on the high-status Longridge Road in Oakland. Mabel, or “Ma”, as she is still known to her family, was a formidable woman with a high temperament, a loving grandmother who helped raise Cerini.

Ma had pet names for her grandchildren: Impy for Kit and Dweetsy for his little sister, which Cerini  confided in her last years, after keeping it to herself all her life. The economic contrast between Diddie’s and Ma’s households may give some clue to why Cerini lived in Northern California for a while, or it may indicate other difficulties in her parents’ household.

Parts of the  family lived in the San Francisco Bay Area and others in the greater Los Angeles area. They have driven between the two on Highway 101 for easily more than 100 years. Cerini spent nearly 20 years at the end of her life living at the middle of that road, in Pismo Beach, finding a connection with the Pacific first established in Newport. In her last years of life, she remarked on the landmark this rock, in Pismo, had provided through her whole life. It is smack dab in the middle of the 101.

After high school, Cerini enrolled at Orange Coast College, the local community college, and then transferred to UC Berkeley. Her mother had lived in Berkeley, and had attended the university until Kit’s birth intervened. Cerini was a member of Zeta Delta  sorority, and remained in contact with several of her sisters. While at Cal, she also started working as a ticket agent at TWA, and, in an early instance of remote learning, passed a history class there without the professor knowing who she was. Her free flights allowed her to be present to take the exam, but she had arranged with others to share their notes while she was away, and the instructor was left asking the class who this Cerini Creely was who had turned in an excellent final assignment. 

It was at Cal that Cerini met David Bess. When they went out on one of their first dates on a Friday during Lent, he was relieved that she ordered a hamburger. Her name indicated that her family was Irish, and if she had been Catholic, then meat would have been forbidden. As it turned out, it was her grandmother’s Episcopalian affiliation that she had settled on. Bunny, her father, who attended mass all his life, had been excommunicated for marrying a Protestant.

After college, Cerini did a  Walkabout, touring England, Germany, Italy and other European countries on bicycles and trains, crossing the Atlantic on a ship. This gap year is a tradition that subsequent generations have carried on. She prized her memories of nice German boys at the youth hostel stripping to their Lederhosen and taking sponge baths while her American companions remained sweaty and smelly because there was no shower. She gained access to her friend’s Italian relatives’ kitchens connecting to her great grandfather’s heritage, Francisco Cerini, a Florentine native who had immigrated to San Francisco in the 1850s.

Cerini married Dave in California while he was in the Navy, and they drove cross-country to Athens GA where he was stationed. She followed him to Japan to his destroyer’s home port. In a significant departure from common practice, they lived “on the economy”, or off base. This was out of the ordinary not only because it was a decade and a half after WWII, but also because of cultural attitudes among military families.

Cerini worked hard on learning Japanese, and read extensively about the culture and history of the place, still evidenced by her bookshelf today. Living in a traditional house with walls she described as made of rice-paper, they furnished it with antiques they bought locally. These antiques still furnish their homes. When a typhoon approached, Dave’s ship went to sea to avoid damage in port, and Cerini hunkered down as much as one could in such a lightweight dwelling. Interested in what exactly a typhoon was, she was taken aback to find it equated in the dictionary with a hurricane, not part of her experience in California, but a concept that really made her sit up and take notice!

The Navy took David to Bremerton WA, and then to Oxnard CA.  During David’s last few months in the Navy in Southern California, she gave birth to Peter (later Piet). In both places, they lived on or near the water: in Washington, they could even go clamming for their dinner in the front yard! After David’s discharge, around the time Timothy was born, his work took them to Los Angeles, and then to Berkeley again, where he studied for his Master’s degree at Cal. He started teaching at Cal Poly Pomona, close to her brother’s young family in Costa Mesa.

Cerini’s prodigious energies went into childrearing and running a household. She and David bought a 1906 Craftsman style house on Kingsley Avenue in Pomona with a modern 1970s linoleum kitchen and a laundry chute from the upper floors. They painted the kitchen cabinets broadly in bold colors, and entertained in a living room with a plate glass front window, hardwood floors, built-in varnished wood cabinets with leaded glass doors, and an immense “oriental” style rug. A large Marimekko print greeted guests, and the cane backed couch’s cushions were re-upholstered in lime-green wet-look vinyl. Beautiful mid-century "architects" chairs were positioned in the living room, in front of the fireplace, and a gorgeous wooden surround in the formal dining room was the site of many family dinners. 

The house was regarded by her nieces and nephews as a grand place, who explored every square inch of it, although they mostly avoided the back stairs and cellar, as these were considered to be spooky and possibly haunted.

The family vehicle was a 1972 Volkswagen Westfalia camper. This served not only as a camper in its own right, but also as a way to go backpacking, the 1970s fad based on new, lightweight gear. They started with well-equipped, Sierra Club standard, 10-essentials day hikes, and then progressed to real backpacking trips in the High Sierras. Goose-down sleeping bags were usually the only thing bought new-- the rest of the large items she found thrift shopping, something she indulged in all her life. She found Boy Scout troops for the children based on their focus on backpacking, not car-camping.

In the Pomona house, she raised not only her 2 sons, but also, at various times, foster sons George Berletich and Kenneth Herrera, now known as Philip Henley. Her nieces and nephews were sometimes in her care, sometimes to attend  swim lessons, which looms large in her nephew James’s memory. She showed him at about kindergarten age that he could swim to her arms unaided in the cold, overcast summer morning waters of the Chaffey High School pool. She regarded swimming as a crucial life skill, not surprising for someone who had grown up on the beach. Her sons also took mandatory swim-lessons in the summers.

While raising her sons to become dyed in the wool swimmers had mixed success, another important life skill, bicycling, stuck with her sons, one of whom raced mountain bikes and the other who commutes on a bike. She raised them to get out in traffic and ride according to the rules that apply to cars. In about 1970, she took both sons, along with a somewhat nervous foster son George, to Santa Barbara on bikes. Tim, 7, only had one gear and a coaster brake. The others had 3 speeds. She admonished her sons not foolishly to buy bicycles new: there were plenty of good bikes out there in thrift shops. Often, a coat of spraypaint was all that was needed. 

From front: Tim, Peter, worried looking George, Cerini

Luggage on the trip was canvas suitcases bungeed to luggage racks. The route west of Newhall led up oil company access roads. She probably wasn’t supposed to be there, but her map showed a road, so she took it.  It became clear that this was a dead end, so she had the boys lift their baggage and then their bikes over a barbed wire fence. So far, so good, but the route north to the highway crossed a motorcycle park. The riders there found it amusing to say the least to see a family of cyclists pushing heavily laden bikes through the sand as they buzzed past. This episode demonstrates an obstinate, anarchic aspect of Cerini’s personality that she has successfully passed on to at least one of her sons, and nieces Elizabeth and Emily.

About the time Cerini’s sons were in junior high school, as it used to be called, she took on the daunting task of becoming a lawyer, following in her grandfather James Creely and uncle Frank Creely’s footsteps. She studied at LaVerne College’s law school, and edited the law review there. The children were left in the law library to do their homework, and sent to Del Taco to buy dinner. She passed the Bar Exam in 1976: Dave had taken the boys to the Montreal Olympics and the bicentennial celebrations in New England to get them out of her hair, and she rejoined them for the return trip.

For the first time since starting a family, Cerini took a job outside the home at a law firm in Covina, connecting to the scouting leaders whose troop she would send Peter and Tim to. Around this time of increasing independence, she separated and later divorced from Dave. Cerini stayed in the house in Pomona as the boys finished high school.

It was at this point that Cerini re-connected with her Christian faith, which had started in childhood, and began to participate in a singles group at an evangelical church. Here she established some of the stronger friendships of her later life with women who were staunchly Christian and found themselves in search of a partner. While these relationships, and shared worship, nourished her soul, she remained single.

Cerini left the Covina firm to start her own practice, focusing on cases relating to family law, but she found she didn’t generally enjoy the company of attorneys. She went to work for Jet Propulsion Laboratory in Pasadena in contract administration. She was thrilled to be involved in JPL’s space exploration projects, sometimes witnessing momentous successes live with the other employees and collecting souvenirs of NASA projects.

Cerini stayed at JPL until she was nearly 70. She had invested in rental properties in Arroyo Grande, near Pismo Beach, often staying there in local motels amid the tang of the salt air and the sound of the surf. With Diddie’s death in her 90s, Cerini was able to buy a small mid-century house about 200 yards from the sea bluff in Shell Beach, part of Pismo where she lived out almost 20 years, attending Oak Park Christian Church in neighboring Grover Beach.

While continuing to visit thrift stores, Cerini also used this time to return to her youthful wanderlust, stocking her Lexus with Triple-A maps of California from Temecula to Berkeley, through the landscape she knew best: grassy hills, dotted with live oaks on one side and the pacific ocean on the other. These two landscapes lay on either side of her through the window of her car as she drove through the central coast.

Cerini remained a voracious reader through this time, her tastes running toward spy thrillers, and engaged actively with the stock market, making notes in the margins of newspapers and magazines, and staying on top of her personal finances. Sadly, dementia made all this more difficult, and in 2020 it was so hard for her to organize her life that she agreed to live with Tim in Rancho Cucamonga, alternating between watching TV and enjoying the vista of sky and trees on his patio. A fall sent her to a convalescent home near Tim’s house where he was able to supervise her care for 2 more years before death took her.

She was a major influence in the culture of her family, and passed on a deep appreciation of all of California's landscapes, a belief in the power of the ocean, a reverence of horses, and a veneration of books and the importance of literacy.

She was a loving mother and aunt, and helped parent her sons, foster sons, nieces and nephews with the same mixture of affection, firmness and humor she was raised with. She was at the center of her  family, and was deeply loved and respected. She will be missed, and remembered, always.


Saturday, June 22, 2024

An Actually Informative Timeline of my Cancer Journey

 'Round January I noticed a lump on my lymph note at the jawline and irritation at the base of the tongue. I gave it a couple weeks to resolve, and it did not.

I had a dentist appointment in February, and scheduled a medical checkup for the same day. The dentist didn't see anything on my tongue during their usual oral cancer check, even with my extra concern. Doctor sent me to an ENT.

ENT stuck a camera up my nose [Fun! Remember the scene in "Total Recall"? If not, don't go watch that now. Anyway, just a tiny camera, not a... well, anyways!]. Couple days later a couple demands come in via the ENT to get a scan of some kind involving large machines into which you are moved by servo-motors. That sends me to the point man on the cancer team [see "Second Opinion", I think, re: Occam's Razor.]

At this point, Kaiser just starts taking liberties with my time. I'm like, "Can we maybe schedule some of these on the same day? Every time I get an appointment, I have to spend about an hour writing sub plans!". Yeah, so Dr. G, the point man, sends me to more electronic tunnels with a slab on a servo, and a couple of biopsies that confirm that it is HPV- related-- not, thankfully, related to my 8 years as a smoker.

By this time, the school year is really coming to a head. Maybe we can start this after school is out? Maybe I can actually Get Away at least a little in early summer. Nope. Well, Dr. G hands me off to radiation therapy and chemotherapy folks. From here on in, Kaiser has dibs on my time. During the last week of school, I miss 4 of 5 days [see "Peaks and Troughs], returning only to say heartfelt goodbyes to my li'l bunnies, and providing precious little guidance to my subs. Bless substitute teachers' hearts!!! They muddled through and nothing got broken except the disc drawer of the DVD player that I only ever use on the last day of school.

That last week had me recovering from the installation of a feeding tube on my stomach which was not as fun as I had been led to believe. It hurt for quite a while, though on day 4 I was able to ride my bike and get it up on the train to see the students.

2 weeks after surgery,  it was time to start radiation daily, Monday to Friday, and chemo once a week right after radiation.

The first radiation was harsh. It usually takes about 5 or 10 minutes, but the first session takes 15 or 20 minutes. Your tongue is immobilized, and you have to be able to breathe through your nose. Fortunately, this is something I have been practicing for the past 4 years or so, since my morning grudge matches against the Berkeley Hills on a bicycle. My goal there was to both inhale and exhale only through my nose, inspired by "Breath" by  James Nestor, an author interviewed by Terry Gross in 2020. This is part of my one-word title book collection.*

The first session was very, very difficult.  After that, it gets both objectively and subjectively shorter. I'll talk below about what the outcomes and side effects of radiation therapy.

Next up was chemo. Just like the scenes in "Breaking Bad", but a bit more medical, and less comfy. Sweet nurses. Claudia accompanied me at the first session. This whole thing creates a great deal anxiety for her. Lots of IV hydration beforehand. I was doing fine. In fact, next radiation treatment I bike the 5 [flat] miles to Kaiser. Mostly just to prove a point. I, uh, did not bike on the next 2 days. 

I did fine for the next day and a half, and I failed preemptively to take my nausea meds. Nausea, a Greek term, means "puking your guts out", apparently. Through today, Saturday, I am not good for much, in part because you can't drive your car without gas and you can't run your body or your mind without food.

As you can see, I am now well enough to fire up my laptop and type. I want to take a walk in a bit. I'm doing better.  I'll add more to the timeline next time. I want to review for myself and for any interested reader what the process will be-- it gets worse-- and what the effects will be.




*One word title. Preferably a mass noun like "sand", not a count noun like "trees". Nonfiction. Subject of book must be the same as the title. Examples: "Vanilla", "Cod", "Salt", "Banana"

Thursday, June 6, 2024

Dumb Stuff I Gotta Do

Dumb Stuff I Gotta Do


My dad used to have a notepad in, I think, the early 80s where each page, if I remember  right, said the above title. It was a kind of dayrunner notebook. Such notebooks are still available.

I have to do an amazing variety of dumb stuff these days. Thing is, for years now, largely in the trenches of elementary education, I have realized that the key for me is not to think about the things I have to do, but to think about how I need to go about doing them.

This has led me to strategize or "plan" my short to middle term future actions. Plan is a word that I am told refers to thinking about the future in terms of concrete, ordered steps. It may amaze some of you to know that I can entertain this kind of thinking at all. It amazes me. Now, my dad, you see; planning was actually part of his job title. He is an emeritus professor of Urban Planning, a Planner, and a planner. The gene was not passed on.

For myself, the problem has not been planning things out, but rather communicating to ordinary Homo Sapiens Sapiens just what those plans are. This comes must sharply into focus in the various journeys I have taken, such as my exquisite month of filth and suffering in Quebec on a bicycle last summer, but also in something as simple as what I can get up to just traveling form Emeryville Amtrak home. Pity the fool who would be subject to these whims. In company, I tend to leave the planning, for better or worse to others.

The watchword here for me is that if you can't change your mind, how do you know you even have one?

Well, I been changin' a lotta plans lately. This current week was to be a heroic glidepath of not teaching too hard as we come down to the end of the year. Oddly, Kaiser seems to have a different view of things. I gave up on asking them to schedule my appointments on days that were convenient to me. They just have no understanding of what it takes to set up a substitute teacher even in glidepath days. Their apathy toward the needs of my working life is palpable. So it is that my last week of the school year has an at least 3 day cookie cutter hole in it. 

My line in the sand is the last day of school. Clearly, nothin' educational is going to happen tomorrow, Friday, before the kids leave for summer. I do have a lot of organizing to do, that is, I need to have the kids take home everything in their desks. Turns out tomorrow's work day is not a "thing I have to do", not a "thing I need to work out how to do", but rather a thing I will not be able to do.

There is a famous and perhaps apocryphal quote of a pro cyclist, Tom Simpson, who died on the Tour de France in 1967. He had been using amphetamines, among other things, in an apparent effort to improve his performance. Allegedly, his last words were "Put me back on my bike." There are stickers available with this phrase. (I think I need one.) The tragicomical thing about this is that at some point, we need to acknowledge that we cannot just pedal away. In his case, he really needed to get on with the business of dying, and he did. Cyclists visit his memorial on a French mountain road. Sheesh. (This is not the kind of cyclist I am.)

Well, anyways, back to the subject at hand! My plan was to finish the school year and then start therapy. Funny, not everyone has that option. Not every teacher even has their cancer line up with their calendar. But here we are. As to finishing the school year, I have had to scale way back, as I said above. But at a certain point, school year or not, a teacher has to face the possibility of just leaving the whole shebang looking like a bomb has gone off, just walk away, leaving it for the hapless sod who has to clean it up. Leaving the spare underwear in the closet (rainy days on the bike), the yogurt container forgotten on the snack shelf (it keeps surprisingly well!), and the despicable pile of ignored paperwork for someone else to deal with.

I just found out that there will be a 1 week gap between the end of school and the beginning of radiation therapy. If the pain of my abdominal surgery (long story, off topic here, and as you can see, I stick doggedly to my topic) recedes, I will be able to use that to impose some kind of order on the room for whoever it is who starts out next school year in it. It may not be me.

Tuesday, June 4, 2024

Peaks and Troughs


Yesterday, in the last week of school, I played in the annual teachers vs. 6th graders soccer game. I've been doing that since I came to this (soccer-mad) school 9 years ago. 

The experience when I first came to the school was quasi-religious. It lit up circuits dormant since I was about 10 years old: the spatiality of the game, the focus of the game. [Note: this may be the basis of how I behave at political demos.]

As one commentator famously said, "Some people believe football is a matter of life and death...I can assure you it is much, much more important than that." I would not go that far, but it is pretty cool. 

Anyway, yesterday I was on top of the world physically. Now, to quote a favorite olde epitaph, I am a poor caitiff.

Radiation treatment on my throat will make swallowing feel comparatively like it does when you have strep throat. (As a kid, I thought it meant your throat was stripped.) To keep my weight constant and the tumor in the same place for the radiation (X-ray radiation, actually), I have a gastro-something-or-other tube installed to inject "food" directly into my stomach.

If anyone can find that Alan Watts quote about not trusting anyone who refers to food as fuel, I would appreciate seeing that.

It might have been nice for Kaiser to let me know that I would be pretty fucked up for the next 24 hours. I have 3 sub days this week, the last week of the school year. I will not relinquish the last day of school, though, not unless there is bleeding, severe dizziness, or projectile vomiting.

Second Opinion

Doctor says, "You're overweight!" I say, "I want a second opinion." He responds, "Yeah, you're ugly, too!!"

Well, anyway, the doctor tells me that based on Occam's Razor (i.e. "If it walks like a duck...), it's an HPV related cancerous tumor on my tonsil, but that actually good news. It involves chemo, and that's tough, real tough, but odds are good that I will recover.

I have 3 questions. One is about cancer. Another is about treatment. My third question is about cannabis, what we used to call "pot" in the dark ages. He says it does not interfere with the treatment. Our science teacher Isabel says that cannabis has some good medicinal qualities with things like cancer. Honey, I ain't interested in medicinal benefits. There's only one thing I'm interested in with pot. 

"Hard work fine, and hard work good, but first take care of head." -The Toys, "Smoke Two Joints", played on KFOG every Friday at 5 p.m. back when we had rock 'n' roll radio in the Bay Area. No, I will not be smoking. For one, that's not hip. It's not easily dosable, and the doctors have some rather dire things to say about inhaling smoke during chemo. Like, fungus infections and stuff. I'm pretty sure that's bad.